| 袁 飒,陈艳妮,应艳红,吴 琳,翟明光.高危儿随访情况分析及其父母生命质量调查研究[J].现代生物医学进展英文版,2020,(3):549-552. |
| 高危儿随访情况分析及其父母生命质量调查研究 |
| Follow-up Analysis of High-risk Infants and Investigation of Their Parents' Quality of Life |
| Received:September 05, 2019 Revised:September 28, 2019 |
| DOI：10.13241/j.cnki.pmb.2020.03.032 |
| 中文关键词: 高危儿 随访 失访原因 生命质量 高危因素 |
| 英文关键词: High-risk infants Follow-up Reasons for the loss Quality of life High-risk factors |
| 基金项目:陕西省卫生科研基金项目（2015NY1057） |
| Author Name | Affiliation | E-mail | | YUAN Sa | Department of Child Healthcare, 3201 Hospital Affiliated to Medical College of Xi'an Jiaotong University, Hanzhong, Shaanxi, 723000, China | yuanfengii@163.com | | CHEN Yan-ni | Department of Child Healthcare, Xi'an Children's Hospital, Xi'an, Shaanxi, 710003, China | | | YING Yan-hong | Department of Child Healthcare, 3201 Hospital Affiliated to Medical College of Xi'an Jiaotong University, Hanzhong, Shaanxi, 723000, China | | | WU Lin | Department of Child Healthcare, 3201 Hospital Affiliated to Medical College of Xi'an Jiaotong University, Hanzhong, Shaanxi, 723000, China | | | ZHAI Ming-guang | Department of Child Healthcare, 3201 Hospital Affiliated to Medical College of Xi'an Jiaotong University, Hanzhong, Shaanxi, 723000, China | |
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| 中文摘要: |
| 摘要 目的：了解高危儿随访情况并对其父母生命质量进行调查。方法：选取2017年5月～2019年5月于西安交通大学医学院附属三二〇一医院儿童保健科就诊的400例高危儿作为研究对象，分析400例高危儿的高危因素，统计随访次数，分析随访次数1～2次的高危儿的失访原因，同时采用SF-36量表评估高危儿父母与正常儿父母的生命质量。结果：按照占比从高到低的顺序，400例高危儿的高危因素分别为早产、低出生体重、高胆红素血症、窒息和（或）缺氧缺血性脑病、颅内出血、母亲高危因素、吸入性肺炎及其他，占比分别为74.00%、18.50%、13.25%、6.75%、2.75%、2.50%、1.25%、2.00%。400例高危儿中随访次数1～2次183例，占比45.75%，3～5次57例，占比14.25%，≥6次人数160例，占比40.00%。183例随访次数1～2次高危儿失访原因主要是有问题再来医院、孩子正常、不了解随访重要性、自己有育儿经验、孩子小，不方便等。高危儿父母生理机能、生理职能、躯体疼痛、一般健康状况、精力、社会功能、情感职能、精神健康评分均低于正常儿父母（均P＜0.05）。结论：高危儿的随访失访率相对较高，其主要原因可能与父母的主观意识有关，此外，高危儿父母生命质量降低，临床工作中可通过加强高危儿系统管理以及对高危儿父母的宣教力度，从而降低失访率，提高高危儿父母的生命质量。 |
| 英文摘要: |
| ABSTRACT Objective: To study the follow-up of high-risk infants and to investigate their parents' quality of life. Methods: 400 high-risk infants who were treated in the Child Healthcare Department of 3201 Hospital Affiliated to Medical College of Xi'an Jiaotong University from May 2017 to May 2019 were selected as the research objects. The risk factors of 400 high-risk infants were analyzed, the follow-up times were counted, and the reasons for the loss of high-risk infants with 1-2 follow-up times were analyzed. Meanwhile, SF-36 scale was used to evaluate the quality of life of parents of high-risk infants and normal infants. Results: According to the order of proportion from high to low, the high-risk factors of 400 high-risk infants were preterm birth, low birth weight, hyperbilirubinemia, asphyxia and/or hypoxic ischemic encephalopathy, intracranial hemorrhage, high risk factors for mothers, inhalation pneumonia, others, accounting for 74.00%, 18.50%, 13.25%, 6.75%, 2.75%, 2.50%, 1.25% and 2.00% respectively. The 400 high-risk infants were followed up for 1~2 times in 183 cases, accounting for 45.75%, 3~5 times in 57 cases, accounting for 14.25%, and ≥6 times in 160 cases, accounting for 40.00%. The main reasons for the loss of 183 high-risk infants were that they came back to the hospital with problems, normal children, understanding the importance of follow-up, they had parenting experience, and the children were small and inconvenient. The scores of parents' physiological function, physiological function, somatic pain, general health status, energy, social function, emotional function and mental function of high-risk infants were all lower than those of parents of normal infants (all P<0.05). Conclusion: The follow-up loss rate of high-risk infants is relatively high, and the main reason may be related to the subjective consciousness of parents. In addition, the quality of life of parents of high-risk infants decreased. In clinical work, we can reduce the rate of missing visits and improve the quality of life of parents of high-risk infants by strengthening the systematic management of high-risk infants and educating parents of high-risk infants. |
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