| 袁会娟,张业平,黄 燕,吴媛媛,任 静.矮小症儿童健康相关生活质量与家庭功能和社会适应能力的相关性分析[J].,2022,(14):2705-2708 |
| 矮小症儿童健康相关生活质量与家庭功能和社会适应能力的相关性分析 |
| Correlation Analysis between Health-Related Quality of Life, Family Function and Social Adaptability in Children with Dwarfism |
| 投稿时间：2022-01-10 修订日期：2022-01-31 |
| DOI：10.13241/j.cnki.pmb.2022.14.021 |
| 中文关键词: 矮小症 健康相关生活质量 家庭功能 社会适应能力 相关性 |
| 英文关键词: Dwarfism Health-related quality of life Family function Social adaptability Correlation |
| 基金项目:安徽省卫生健康委科研计划项目（2019SEY009） |
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| 中文摘要: |
| 摘要 目的：探讨矮小症儿童健康相关生活质量与家庭功能、社会适应能力的相关性。方法：选择我院内分泌代谢科2018年5月～2021年5月收治的矮小症患儿80例为矮小症组，另随机抽取同期于我院进行体检的80例正常身高的儿童作为对照组。分别采用儿童生活质量核心通用量表（PedsQL4.0）、家庭亲密度与适应性量表（FACES Ⅱ-CV）、儿童适应行为评定量表（SAB）评估两组受试者的健康相关生活质量、家庭功能、社会适应能力并进行比较。利用Pearson相关系数分析PedsQL4.0评分与FACESⅡ-CV、SAB评分的相关性。结果：矮小症组PedsQL4.0各维度（学校功能、情感功能、生理功能、社交功能）评分及总分均低于对照组（P＜0.05）。矮小症组FACESⅡ-CV分量表评分（亲密度量表、适应性量表）及总分均低于对照组（P＜0.05）。矮小症组SAB各因子（独立功能因子、认知功能因子、社会/自制因子）评分及适应能力商数（ADQ）均低于对照组（P＜0.05）。Pearson相关性分析结果显示，矮小症患儿的PedsQL4.0评分与亲密度量表评分、适应性量表评分、FACESⅡ-CV总分、独立功能因子评分、认知功能因子评分、社会/自制因子评分以及ADQ均呈正相关（P＜0.05）。结论：矮小症患儿健康相关生活质量受家庭功能以及社会适应能力的影响，通过改善家庭亲密度，提高患儿的社会适应能力，可能对提升矮小症患儿生活质量有益。 |
| 英文摘要: |
| ABSTRACT Objective: To explore the correlation between health-related quality of life, family function and social adaptability of children with dwarfism. Methods: 80 children with dwarfism who were treated in the endocrine metabolism department of our hospital from May 2018 to May 2021 were selected as the dwarfism group, another 80 children with normal height were randomly selected as the control group. The health-related quality of life, family function and social adaptability of the two groups were evaluated by the pediatric quality of life inventory measurement models 4.0 (PedsQL4.0), the family adaptability and cohesion evaluation scale Ⅱ-chinese version (FACES Ⅱ-CV) and the children's social of adaptive behavior (SAB). The correlation between PedsQL4.0 score and FACES Ⅱ-CV and SAB score was analyzed by Pearson correlation coefficient. Results: The PedsQL4.0 dimensions (school function, emotional function, physiological function, social function) score and total score in the dwarfism group were lower than those in the control group (P<0.05). The FACESⅡ-CV subscale (closeness scale score, adaptability scale score) and total score in the dwarfism group were lower than those in the control group (P<0.05). The SAB each factor (independent function factor, cognitive function factor, social/self-control factor) scores and adaptive quotient (ADQ) in dwarfism group were lower than those in control group (P<0.05). Pearson correlation analysis showed that PedsQL4.0 score was positively correlated with intimacy scale score, adaptability Scale score, FACESⅡ-CV total score, independent function factor score, cognitive function factor score, social/self-control factor score and ADQ (P < 0.05). Conclusion: The health-related quality of life of children with dwarfism is affected by family function and social adaptability. Improving family closeness and social adaptability may be beneficial to improve the quality of life of children with dwarfism. |
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